Miss Diagnosis: Blog Visitors

Sunday, April 5, 2009

Blog Visitors

I'm really curious; am I writing to an audience? I have no idea if anyone is following this blog or if it's strictly me journaling for my own benefit. After a month plus I've decided I definitely enjoy doing it. I don't know that I would say it's therapeutic exactly, but putting something in writing seems to mean I have less stuff cluttering up my brain.

If you are reading this will you please either click on the tab and post a brief comment to let me know you've stopped by, or if you have my e-mail address send me a quick note? Thanks!

4 comments:

judycolbyApril 5, 2009 at 11:49 AM
I read you faithfully! I think a lot of people read but never comment.
I also find it therapeutic. For some reason it seems different than keeping a journal. I also find it helpful to keep track of how things unfold.
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Erin KelleyApril 6, 2009 at 1:15 AM
I read your blog!! Thank you so much for posting!!

I just started mine and wondered the same thing the other day --- but decided oh well... the experience seems calming.

:) Erin
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KristinApril 10, 2009 at 12:19 PM
Hi Rene,

I subscribed to your blog a short while ago. Blogging is therapeutic for you as the writer, but it's also beneficial to others. So keep writing!

I too am a survivor of Cushing's syndrome and have been blogging about my journey for more than a year now. I recently started a group that you might be interested in. It's called the Cushing's Partner Program, a place where patients can partner up with survivors of Cushing's to gain an inside perspective on the recovery journey from Cushing's. To learn more or to join our group, please follow this link: http://www.meetup.com/The-Cushings-Partner-Program-Support-Group/.

I wish you & your family the best of luck!

Take care,
Kristin
www.mybattlewithcushings.com
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AmberOctober 12, 2009 at 6:53 PM
Hi Rene,
I just found your blog tonight! I was so excited to find it. I've been looking for others like me with a child with Cushing's. Someone to talk to. I too have a child with Cushing's Disease. He is 15 years old and just had surgery to remove hit pit tumor on October 1st. So far he is doing well. We live in Iowa and his surgery was done at the University of Iowa.
My email address is amulnix@coe.edu if you would ever like to talk.
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Transphenoidal Pituitary Surgery- From the UCSF web site

What happens during surgery?
The surgical removal of the pituitary adenoma is performed by a technique called a transsphenoidal operation. The word 'transsphenoidal' describes the path the surgeon follows to reach the pituitary gland. The word comes from 'trans', meaning 'to cross or pass through', and 'sphenoid', the name of the cavity (the sphenoid sinus) that is passed through to reach the pituitary gland. Newer techniques and improvements in technology now allow removal of these tumors without the need for an incision under the lip or within the nostril. The surgeon begins the approach by entering through the nostril on one side. The surgeon uses a brilliant fiber optic light to illuminate the internal anatomy, a microscope to magnify the area of surgery to 12 times the actual size, and very tiny microsurgical instruments especially designed for this particular operation. The surgeon guides the surgical instrument into the nasal cavity and an opening is made in the sphenoid bone. The sphenoid sinus is entered, and then an opening is made in the wall of the sella turcica to expose the pituitary gland. The adenoma can be readily distinguished from the normal pituitary gland tissue and is removed without removing the normal gland. After the surgeon removes all the tumor tissue, the small cavity that is left is treated with alcohol to destroy any tumor cells that may remain. This cavity is then sealed, sometimes with a piece of fat that the surgeon removes from the patient's abdomen. The surgeon then applies a biological 'glue' that helps seal the pituitary area from the nose and promotes natural healing. No nasal packs are used with this approach.