Miss Diagnosis: It Will Be Two Weeks Tomorrow

Wednesday, July 29, 2009

It Will Be Two Weeks Tomorrow

I am so happy to see things still progressing in the right direction. I can't believe how quickly things have changed. Alex gets up and out of bed every day...usually around 7:00 am. That is amazing compared to what time she was dragging herself out of bed, noon or 1:00 pm. Not only does she get out of bed, she is taking a shower every day and running errands with me!

Yesterday she met with her school counselor and registered for classes that start on the 10th. She isn't taking any online classes because she thinks she will be feeling well enough to actually go to the campus. Later in the day she bought a new desk for her room because she is excited to get started on school work. And another thing? She has a job interview, and it sounds like a sure thing. The Montessori preschool the kids went to is interested in hiring her part time and they are willing to work around her health/recovery!

We are still weaning; her current hydro dose is 20-10-2.5. She is taking half a Florinef in the am and half in the pm and she also started DHEA last week.

3 comments:

jennyrJuly 29, 2009 at 2:52 PM
That's wonderful Rene! Sounds like she's keen to get out there and catch up on life, good on her!
Jenny.
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JessicaAugust 3, 2009 at 7:49 AM
Oh, yay! I still have yet to get up and out of bed on a daily basis, but I'm working on that:P. I'm really glad that she didn't have to go through the 5 weeks of puking like I did. I should e-mail her soon.
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Hi, I'm ReneAugust 3, 2009 at 1:32 PM
Thanks Jess, I know she would love to hear from you!
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Transphenoidal Pituitary Surgery- From the UCSF web site

What happens during surgery?
The surgical removal of the pituitary adenoma is performed by a technique called a transsphenoidal operation. The word 'transsphenoidal' describes the path the surgeon follows to reach the pituitary gland. The word comes from 'trans', meaning 'to cross or pass through', and 'sphenoid', the name of the cavity (the sphenoid sinus) that is passed through to reach the pituitary gland. Newer techniques and improvements in technology now allow removal of these tumors without the need for an incision under the lip or within the nostril. The surgeon begins the approach by entering through the nostril on one side. The surgeon uses a brilliant fiber optic light to illuminate the internal anatomy, a microscope to magnify the area of surgery to 12 times the actual size, and very tiny microsurgical instruments especially designed for this particular operation. The surgeon guides the surgical instrument into the nasal cavity and an opening is made in the sphenoid bone. The sphenoid sinus is entered, and then an opening is made in the wall of the sella turcica to expose the pituitary gland. The adenoma can be readily distinguished from the normal pituitary gland tissue and is removed without removing the normal gland. After the surgeon removes all the tumor tissue, the small cavity that is left is treated with alcohol to destroy any tumor cells that may remain. This cavity is then sealed, sometimes with a piece of fat that the surgeon removes from the patient's abdomen. The surgeon then applies a biological 'glue' that helps seal the pituitary area from the nose and promotes natural healing. No nasal packs are used with this approach.