Thursday, August 6, 2009

Three Weeks and Gratitude

I am emotionally overwhelmed this morning. I am thankful to God and to all of our family and friends who have supported us through the years. We wouldn't be here without all my friends and advisers at Thank you all. The tears are flowing.

So, the big news? Today is Alex's first day of work. I truly believed that it was likely she would never be well enough to leave the house; that she would live with us forever on permanent disability into adulthood. Many times I felt she would die before she was cured. It is incomprehensible that after only 3 weeks she has shown such vast improvement.

There have been a lot of ups and downs over the past couple weeks, but the steady progress forward is apparent. The GI stuff has all normalized, we hope that means Crohn's is a thing of the past but realize this may just be a remission. The headaches have been bad, but we think that once we get the dosages stable on both the hydro and fludro things will improve. Most mornings she is up at 7:00 or 7:30 feeling fine but there seems to be a mid afternoon crash, with tiredness and headache for the rest of the day. We are still working on it.

Stay tuned for more positive updates!


  1. Have you maybe considered either upping her afternoon dose, or adding another small dose somewhere in the day?

  2. Rene,
    I'm glad that things are going so well for Alex. Having a job is great. Also good that the GI issues are resolved, hopefully for good. I don't think Justin has any GI issues anymore either.
    Amazing what a cure can do.

  3. This is wonderful news Rene! Tell her congratulations for me. I hope she continues to improve and live her life to the fullest.

  4. Thanks!
    Jess,we are are playing around with the times and dosages; hopefully we will get it right soon!