Saturday, July 25, 2009

She's Melting!

It is so bizarre! I really don't understand how this happens but Alex's appearance is changing. She looks like she has lost a lot of weight but she hasn't actually lost any at all. Her face shape is different and her belly looks so much smaller. Brian thought it might be the change from fat to more muscle but that doesn't make sense at this point. She is still doing absolutely nothing; well, okay she did leave the house yesterday for the first time, but she sure isn't doing anything to build muscle yet!

Years ago when I first believed that Cushing's was the issue there were times we would see her face shape change. Every once in a while we would be sitting at the table eating dinner and Brian and I would look at her and look at each other and both see it at the same time. That silent communication thing (30 years together) where we said nothing but silently acknowledged that she had changed yet again before out eyes.

I am excited! It feels like we are started down a road to recovery!


  1. That's so great Rene! Alex must be pretty happy about that. It's news like that which spurs me on! Hugs to both of you.

  2. I know just what you mean. It's great isn't it? After awhile you almost forget what they looked like preBLA. Yet the scales don't quite reflect how they look.
    Very strange disease.
    I'm glad things are going in the right direction.

  3. It is a strange disease. I'm having the same thing happen. Still no real weight loss, but I'm looking smaller and even wearing some smaller clothes now. I stick to the muscle gain idea. LOL! Glad you are seeing changes already! It IS exciting!


  4. So glad she is getting better after surgery. You all have been through so much. Sounds like you are definitely on the road to recovery. I hope she is feeling less pain and getting stronger every day.