Tuesday, June 15, 2010

It's Been A While

Time flies! Improvements are so slow it seems like nothing changes. On the other hand when I look back things are still continually changing. So, lets see...

Alex's weight loss seems to be stalled at the 25-30 pound mark. She is still working on it but as soon as she loses a few pounds she gains them back a week later. She really no longer has any of the "Cushie" symptoms. At this point it's more about getting her body back to a normal state and adjusting meds, still.

Hydro dose is still the same, though we have had to switch up the timing a bit to avoid headaches every afternoon. Along with 2 fludro a day she is taking 2 salt pills. They seem to help as much as the fludro with keeping her fluid and electrolytes balanced. One week ago we increased the Levoxyl to 75mcg. The Levoxyl has been a really good thing. It has helped with energy levels and helped with the menses. We are hoping the increase of dosage will cause further improvements. The Vyvance isn't working as well as it was so she will start this week on an increased does (30mg) of that as well.

We were talking this weekend about how the changes really do sneak up on you. We were out running errands for several hours and didn't have to slow down or give up and come home. A year ago if we made it through Costco and back home she would have been done for the day.

I'll make sure and post next month when she reaches the one year mark. Hopefully with a picture of the changes!

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