Tuesday, April 6, 2010

Lots of Things

I don't know why I haven't been blogging I actually have quite a bit to say.

The latest news: Alex no longer has high cholesterol or pre-diabetes (insulin resistance). The latest labs are well within range with no medications to help out. Current weight loss is at 25 lbs.

GYN news: Dr. Warner is unable to regulate Alex's cycles with progesterone and thinks a uterine ablation is the answer. Alex and I were both totally on board with the idea till I asked some of my Cushie friends. They have made me re-think and we are going to try more alternatives first. This week Alex will be seeing my GYN for a second opinion. Alex is certain that she does not, and will never want, to bear children of her own. With pituitary damage it will be hard to get pregnant, with no adrenals it would be tricky to sustain a pregnancy, but for her, first and foremost, is that she doesn't want the posssibility of passing on the disease to a child. We both feel adoption will be a better alternative when the time comes. My Cushie friends have advised that it's awfully early to close the door on fertility.

Endo news: Today Alex starts on Levoxyl 50mcg. We persuaded the local endo to do a trial run on thyroid meds. Her numbers are within range but low. We are hoping this is the key to further weight loss, increased energy and regulation of menses.

ADHD news: Alex has been on Vyvance for about a month and a half. It gives her a bit more energy and does help her to focus some. She thinks it makes her feel a bit "flat". I tend to like her a bit "flatter" than usual. I see a huge difference in her ability to have a coversation without being all over the place.

Other news: We got Alex an '02 Honda Accord last week. I got a really good deal through an ad on Craig's List. Our deal has been that the kids have to pay for half of their first car. She will be making monthly payments to us for her half. I think I'm as excited as she is. It is really nice for her to be able to do things on her own.


  1. SO happy for the update, even though I don't comment a lot I think of you both often and pray for both of you.

    It sounds like Alex is really coming along nicely!!

    I agree with the others that say it is too early to discount having children and, who knows, maybe in a few years the doctors will have down the treatment for cushings.

    Cheryl -- Jenny's mom

  2. Hi Rene,

    Sounds like things are improving for Alex. That is wonderful. I think the thyroid meds should help with energy levels and weight loss. Hunter is on 50mg of levothyroxine since December. He was also testing within normal range but on the low side of things. His energy has increased substantially and weight is coming off. He is down about 20 pounds since mid december and looking good and feeling good. Keep us posted!

  3. Late to the party, but I just want to say that if she knows she wants to adopt, she's probably right. :) I've decided I don't want kids at all, but I think if you're old enough to decide you want kids and go out and have them, you're old enough to decide you don't want them and do something to prevent it! I mean, if you regret not having kids, you can fix that and only you suffer, but if you have kids and regret them? Lol, kind of hard to put a teenager up for adoption, and then you have multiple people with their lives messed up. So yeah, I'm glad that Alex's gyno was willing to consider something like that even if it's off the table now!

    It sounds like she doesn't need it anymore, but if her problems return, I would vote her well-being is more important than a hypothetical future bio child, especially since she already doesn't want one. My gyn wouldn't consider anything that might interfere with making babies even though I swore I didn't want them, and that just seems wrong to me. Aren't I worth more than my chance of contributing to overpopulation? :(

    Also, women who can't have children biologically go to the front of the adoption line. :) Fun fact. But whatever the case, I wish you all nothing but happiness.