Friday, May 1, 2009

A Surgery Date, Finally!

I said I would be happy if they would just call and tell me the date. I lied. I'm still not happy. ELEVEN weeks from now, July 16th. There is no way to get in sooner. Dr. Duh wants it scheduled at the Children's Hospital at UCSF; he usually does surgeries at the UCSF Cancer Center across town. He did tell us he would want to do it there because he would be able to put her in the pediatric ICU, where he feels she will get better care. I just wasn't getting the fact that he only has certain, limited, days available to him at that facility.

School starts mid August and I was really hoping she would be able to start the new school year partially recovered. I have heard so many different things when it comes to recovery that I have no idea what to expect. The surgical recovery shouldn't be bad. It's the recovery from Cushing's and trying to get the meds right that can take months, or years. It seems that those who have had Cushing's the longest and are in the "worst" condition are the ones who take the longest to recover. That doesn't give me much hope for a speedy recovery. I think Alex has probably had it since birth and her condition couldn't get much worse.


  1. Oh, Rene, I wish it wasn't so far away. At least you are on the schedule now.

  2. I am sorry you have to wait so long!!! Let me know if I can do anything to help her? A phone call in a few weeks to tell her about my surgery?? All of the waiting is so frustrating... but at least she can start to really fight it.

  3. Thanks guys!
    Erin, her pituitary surgery was so much easier than she imagined~ it's made the idea of the BLA so much less scary than it might be otherwise.It's great to see you "up and about"!