Sunday, May 3, 2009

What's In A Name?

Cancer.I've thought about this a lot lately. Our last two visits to doctors were both to see surgeons who primarily treat cancer patients. Their offices were filled with a collection of bald-headed chemo patients and those wearing masks to prevent infection. It is truly heartbreaking. While Alex and I were saddened to see this it also opened her eyes. "I'm really sick, aren't I?" It's funny; you tell someone Cushing's Disease, and you might as well have said you have a headache. You tell them cancer and the world changes. I'm not diminishing cancer by any means, but it would be nice to have a "label" that would help people understand the seriousness of this disease. My mom had cancer, my dad had cancer, even Brian had skin cancer, but they got a diagnosis, got treatment and were able to go on with life.

I don't think it's completely accurate but some text books state that the survival rate for Cushing's is 50% at 5 years if untreated. Add to that that the typical patient doesn't get properly diagnosed for 7 years. Nice discrepancy, huh? I'm sure it sounds dramatic but some days I'm really scared we won't make it to the finish line. Surgery doesn't scare me, the disease does.


  1. Hi Rene, found your blog after a morning on I had to post a comment on this latest entry... I have often felt the same about the Cushings diagnosis and cancer and I too have had two close family members diagnosed with cancer one is at 5 yrs post and my fa.passed from it 15 years ago so I know what you mean. Why are we poked prodded scanned and misdiagnosed so frequently (it can be just as deadly! it takes away quality of life! Causes enormous loss of $$$.
    Why do we have to PROVE our illness. A tumor is found get it out it is obviously causing issues ya know what I mean. Anyways I could get on a major soap box but I will spare you just wanted to let you know Im right there with you! I wish you and Alex all the best I have a 14 yr old DD and can only imagine your struggles You will be in my prayers and thoughts all the best! lisa (monalisa1966)

  2. Lisa,
    Thank you for stopping by and commenting.We aren't the only ones who feel this way!