Miss Diagnosis: Too old to blog?

Saturday, February 28, 2009

Too old to blog?

This may be over my head, but I'm going to give it a shot. I'm a "hunt and peck" keyboarder and have no computer skills. I have a lot of thoughts bouncing around in my head and thought it might be good to put them down on "paper". Theoretically I plan to do most of my blogging about my daughter Alex, and the battle we have been fighting together to rid her permanently of Cushing's Disease.

5 comments:

judycolbyFebruary 28, 2009 at 8:55 PM
Welcome to the blogging world, Rene.
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Hi, I'm ReneFebruary 28, 2009 at 9:15 PM
Thanks Judy, you guys inspired me!
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judycolbyMarch 1, 2009 at 1:06 AM
You know it helps me to go back and see what all has taken place and when. For some reason I can do this but have never been able to keep a journal. Alex looks great.
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RobinMarch 2, 2009 at 11:33 AM
WOOHOO,Rene! I just found your blog. I'm gonna link to it! Way to go....

You know how important I think it is for us to share our journeys. If we don't, the world just will never realize the difficulties with diagnosis and treatment. Nor the prevalance of Cushing's. Or all the problems that go with it!

Hugs!
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Hi, I'm ReneMarch 2, 2009 at 12:58 PM
Thanks Robin! If you ever catch me with my facts wrong give me a shout! I'd hate to give out incorrect info.
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Transphenoidal Pituitary Surgery- From the UCSF web site

What happens during surgery?
The surgical removal of the pituitary adenoma is performed by a technique called a transsphenoidal operation. The word 'transsphenoidal' describes the path the surgeon follows to reach the pituitary gland. The word comes from 'trans', meaning 'to cross or pass through', and 'sphenoid', the name of the cavity (the sphenoid sinus) that is passed through to reach the pituitary gland. Newer techniques and improvements in technology now allow removal of these tumors without the need for an incision under the lip or within the nostril. The surgeon begins the approach by entering through the nostril on one side. The surgeon uses a brilliant fiber optic light to illuminate the internal anatomy, a microscope to magnify the area of surgery to 12 times the actual size, and very tiny microsurgical instruments especially designed for this particular operation. The surgeon guides the surgical instrument into the nasal cavity and an opening is made in the sphenoid bone. The sphenoid sinus is entered, and then an opening is made in the wall of the sella turcica to expose the pituitary gland. The adenoma can be readily distinguished from the normal pituitary gland tissue and is removed without removing the normal gland. After the surgeon removes all the tumor tissue, the small cavity that is left is treated with alcohol to destroy any tumor cells that may remain. This cavity is then sealed, sometimes with a piece of fat that the surgeon removes from the patient's abdomen. The surgeon then applies a biological 'glue' that helps seal the pituitary area from the nose and promotes natural healing. No nasal packs are used with this approach.