tag:blogger.com,1999:blog-3502187085686294265.post7676301998434461520..comments2021-01-17T22:48:14.594-08:00Comments on Miss Diagnosis: It's Back...Hi, I'm Renehttp://www.blogger.com/profile/14331943349263018106noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3502187085686294265.post-24308499695581920142014-12-16T11:24:14.556-08:002014-12-16T11:24:14.556-08:00Hi Jenn, if there is anything I can do to help ple...Hi Jenn, if there is anything I can do to help please feel free to email me at rbibby@surewest.net. Put Cushing's in the subject line so I won't think its spam. Do you have a support system in place to get you through this? Hi, I'm Renehttps://www.blogger.com/profile/14331943349263018106noreply@blogger.comtag:blogger.com,1999:blog-3502187085686294265.post-5980017949794281332014-12-12T23:50:15.161-08:002014-12-12T23:50:15.161-08:00Hello Rene,
My name is Jenn and I thank you for d...Hello Rene,<br /><br />My name is Jenn and I thank you for detailing everything. I am 25 years old and was told last week that I might have cyclic cushings. I am pending an MRI and more 24 hour urine tests to complete the diagnosis. This comes after years of being told I need to eat better and exercise more. It would take me an entire blog to explain my history, but in the pictures of your daughters you've shown, I can tell you I have the exact same pictures from my childhood. I remember at 12 years old weighing 200+ pounds and wearing a size 16 dress. I am one of four siblings and we all ate and did the exact same things, but I was always severely obese whiles they were normal. When you said the doctors didn't believe the calorie counting, it hit hard because I can't tell you how many doctors (all of them, including my endocrinologist that is now looking at cushings because I came crying into her office with pictures and a year to year outline of symptoms because of frustration) said I need to diet and exercise more. <br /><br />I will pray for your daughter and I hope doctors become more aware of this disease and look for it in children. I pray that parents will find out more information if they see something odd with their child's weight. My parents didn't know better, they thought I might have been sneaking snacks at night. <br /><br />I was diagnosed with hypothyroidism and PCOS and after 5 years of treating those (levothyroxin and birth control pills) none of my symptoms went away. <br /><br />I feel your daughter's frustration. I feel your frustration and I pray everything works out. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3502187085686294265.post-42436456713620409172013-02-07T13:56:30.716-08:002013-02-07T13:56:30.716-08:00Oh Rene, I'm so sorry. :( Prayers coming that...Oh Rene, I'm so sorry. :( Prayers coming that they can find the buggar, and Alex can get on with her life. (((hugs)))Jenny Rasnoreply@blogger.comtag:blogger.com,1999:blog-3502187085686294265.post-67744747065643103742013-02-07T10:57:20.190-08:002013-02-07T10:57:20.190-08:00I am so sorry Rene. I pray that He lift this burd...I am so sorry Rene. I pray that He lift this burden from your family and she will be healedAnonymousnoreply@blogger.com